Dr. Nigel Speight is an internationally renowned UK expert in paediatric myalgic encephalomyelitis (ME). His knowledge, experience and expertise has been invaluable over many years to patients and families, particularly in the increasing number of cases of severe ME, diagnosed or re-diagnosed with labels such as factitious disorder (assuming the child is feigning their symptoms) or factitious disorder by proxy (suspecting parents/caregivers of inducing or maintaining the child’s illness, commonly known as Munchausen’s syndrome by proxy) or pervasive refusal syndrome (severe ME can cause an inability to speak or swallow) or pervasive arousal withdrawal syndrome (severe ME can cause extreme sensitivity to sensory stimuli such as sound, light, touch).
Dr. Nigel Speight commented that he signed Opposing MEGA,
Because I have long and bitter experience of the injustices done to ME sufferers by those doctors who hold to the psychological view of this very real illness. Nigel Speight, DURHAM, United Kingdom. (Link to comment – change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs/c/527889662)
Incredibly to anyone who knows him, in April 2016, the UK General Medical Council (GMC) imposed conditions on Dr. Nigel Speight’s licence to practise, stating that he must not carry out any work in relation to ME/CFS in either a paid or unpaid capacity and must refer any patient with a possible diagnosis of ME/CFS to another consultant paediatrician, keeping a log detailing every such case. These restrictions were provisional until 19th July 2017. Fortunately all were removed unconditionally by a review panel at the Medical Practitioners Tribunal Service (MPTS) in October 2016 and the GMC continues its investigation. As the conditions included public speaking about ME/CFS, it is especially heartwarming to read the comment by Dr. Nigel Speight on a public petition site. We thank him for taking the time to consider and support Opposing MEGA.