The Irish M.E. Trust has been established since 1989 and is a member organisation of the European ME Alliance . EMEA joined the European Federation of Neurological Associations (EFNA) and formed the European ME Research Group (EMERG) in 2015.
From their newsletter November 2016 –
The Irish ME Trust has no hesitation in supporting the objection to MEGA not only because of who it involves but also because they will be using the NHS clinics to get research participants using a broad fatigue marker rather than the CCC or ICC. In addition they will not be recruiting any severe ME people because these people do not present to the CFS clinics in the UK, many having been either harmed by them or dismissed from them because they have nothing to offer. The concern is here that the research pool will once again be so diluted that any findings will at best be worthless or at worst will ‘prove’ the case for ME being a psychological illness with no consistent biomarkers.
Sign Opposing MEGA here –